Myeloma Patient Associations

Are you a patient or a relative and are seeking information about multiple myeloma? Here we list reliable sources about multiple myeloma and links to patients organization in our member countries.

Denmark

  •  Dansk Myelomatose forening

https://www.myelomatose.dk/

  • Kræftens Bekæmpelse - Myelomatose

https://www.cancer.dk/myelomatose-knoglemarvskraeft/

 

Sweden

  • Cancerfonden – Myelom

https://www.cancerfonden.se/om-cancer/cancersjukdomar/myelom

  • Blodcancerförbundet

https://www.blodcancerforbundet.se/myelom

 

Norway

  • Benmargskreft (myelomatose) – Fra helsenorge.no levert av Kreftforeningen

https://helsenorge.no/sykdom/kreft/benmargskreft-myelomatose

  • Myelomatose – Fra Norsk helseinformatikk

https://nhi.no/sykdommer/blod/beinmargssykdommer/myelomatose/

  • Blodkreftforeningen – Norsk pasientorganisasjon

https://www.blodkreftforeningen.no

  • Oslo myelomatosesenter – studier som foregår i Helse Sør-Øst

https://www.ous-research.no/myeloma/

Finland

  • Suomen Syöpäpotilaat ry:n myelooma-verkosto

https://www.syopapotilaat.fi/potilasverkostot/myelooma-potilasverkosto/

  • Tietoa myeloomasta suomeksi (potilaille)

https://www.syopapotilaat.fi/opas/multippeli-myelooma-potilaan-opas/

 

Lithuania

  • Asociacija Kraujas (Patient organization homepage)

https://kraujas.lt/

 

Information in English:

Patient education: Multiple myeloma (The Basics)

https://www.uptodate.com/contents/multiple-myeloma-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Multiple myeloma symptoms, diagnosis, and staging (Beyond the Basics)

https://www.uptodate.com/contents/multiple-myeloma-symptoms-diagnosis-and-staging-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Multiple myeloma treatment (Beyond the Basics)

https://www.uptodate.com/contents/multiple-myeloma-treatment-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Hematopoietic cell transplantation (bone marrow transplantation) (Beyond the Basics) https://www.uptodate.com/contents/hematopoietic-cell-transplantation-bone-marrow-transplantation-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

This website is a presentation of myeloma and the NMSG. The content of the website is for information exclusively. The information given on this site is not meant to and cannot replace professional counseling or treatment by a doctor. The information is not to be used for diagnosing or determining a treatment.

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