Myeloma Patient Associations

Are you a patient or a relative and are seeking information about multiple myeloma? Here we list reliable sources about multiple myeloma and links to patients organization in our member countries.

Denmark

  •  Dansk Myelomatose forening

https://www.myelomatose.dk/

  • Kræftens Bekæmpelse - Myelomatose

https://www.cancer.dk/myelomatose-knoglemarvskraeft/

 

Sweden

  • Cancerfonden – Myelom

https://www.cancerfonden.se/om-cancer/cancersjukdomar/myelom

  • Blodcancerförbundet

https://www.blodcancerforbundet.se/myelom

 

Norway

  • Benmargskreft (myelomatose) – Fra helsenorge.no levert av Kreftforeningen

https://helsenorge.no/sykdom/kreft/benmargskreft-myelomatose

  • Myelomatose – Fra Norsk helseinformatikk

https://nhi.no/sykdommer/blod/beinmargssykdommer/myelomatose/

  • Blodkreftforeningen – Norsk pasientorganisasjon

https://www.blodkreftforeningen.no

  • Oslo myelomatosesenter – studier som foregår i Helse Sør-Øst

https://www.ous-research.no/myeloma/

Finland

  • Suomen Syöpäpotilaat ry:n myelooma-verkosto

https://www.syopapotilaat.fi/potilasverkostot/myelooma-potilasverkosto/

  • Tietoa myeloomasta suomeksi (potilaille)

https://www.syopapotilaat.fi/opas/multippeli-myelooma-potilaan-opas/

 

Lithuania

  • Asociacija Kraujas (Patient organization homepage)

https://kraujas.lt/

 

Information in English:

Patient education: Multiple myeloma (The Basics)

https://www.uptodate.com/contents/multiple-myeloma-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Multiple myeloma symptoms, diagnosis, and staging (Beyond the Basics)

https://www.uptodate.com/contents/multiple-myeloma-symptoms-diagnosis-and-staging-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Multiple myeloma treatment (Beyond the Basics)

https://www.uptodate.com/contents/multiple-myeloma-treatment-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link

 

Patient education: Hematopoietic cell transplantation (bone marrow transplantation) (Beyond the Basics) https://www.uptodate.com/contents/hematopoietic-cell-transplantation-bone-marrow-transplantation-beyond-the-basics?search=multiple%20myeloma&topicRef=6643&source=see_link